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I found your substack through A Midwestern Doctor. I have a son with Down syndrome who will turn 18 next Feb. When my son, Alex was a baby I took him to Kennedy Krieger to be evaluated. Another mom of a child with DS asked to hold my baby and started comparing Alex to her son. Nothing she said was negative but at that moment I decided I would limit how much time we spent with other children who had disabilities. I enrolled Alex in pre-schools with children who did not have disabilities because I wanted him to follow them. I wasn't trying to discriminate. There were many days when I would pick Alex up after work and be sad because he wasn't doing what all his peers were doing (crawling, walking, etc). The funny thng is, he would start doing those things shortly after. My point is, Alex reached all those milestones at his own pace and now does some things better than children without disabilities. It seems to me that everyone compares their children to other children, whether they have disabilities or not. It was an important lesson for me. I once went to an IEP meeting for Alex when he was in elementary school and at the end of the meeting I told them that those meetings were so depressing because all they do is focus on the things he can't do. A therapist there pulled me aside as we were leaving and she said "Don't let these meetings get to you. Alex can't do those things YET." It was very inspirational and now I just focus on the things Alex does well and let everything else go. I'm glad I found your substack. I am going to read through them. BTW, Alex now has a close circle of friends in HS that have Down syndrome.

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